Patient Research advisory panel
Do you have ideas for Lyme disease research in Canada? Do you want to be among the first to know about new and upcoming studies? Are you looking for a way to get involved, and provide feedback?
The Patient Research Advisory Panel was created to offer those affected by Lyme disease, as well as their caregivers and advocates, input into Canadian Lyme disease research initiatives.
How does this work?
Once you join by filling out the form below, you will periodically receive e-mails outlining a new research concept. You will then have an opportunity to evaluate the plan, and submit your input. The investigator(s) will carefully consider your feedback, and provide a written summary of the Panel’s response and any modifications that were made to the study to accommodate concerns that were raised.
What are the terms and conditions?
The Patient Research Advisory Panel was created to offer those affected by Lyme disease, as well as their caregivers and advocates, input into Canadian Lyme disease research initiatives.
How does this work?
Once you join by filling out the form below, you will periodically receive e-mails outlining a new research concept. You will then have an opportunity to evaluate the plan, and submit your input. The investigator(s) will carefully consider your feedback, and provide a written summary of the Panel’s response and any modifications that were made to the study to accommodate concerns that were raised.
What are the terms and conditions?
- All members of the Lyme disease community are invited to join.
- You may withdraw at any time.
- You are not required to provide feedback, and may offer it at your own discretion.
- Conduct from any party (scientific investigator, patient advisor etc.) that is deemed abusive will not be tolerated.
- Research correspondence should be considered confidential until the findings are presented publically.
Contact us: lymeresearchpanel@gmail.com
